When trying to get the doctors to understand my situation, I have tried telling my story in great detail, presenting different props that I have prepared, and providing past blood tests and what not. The problem I've faced with this method is that many doctors demonstrate behavior losing interest and/or putting up some sort of front that they understood what I have said, and them trivialize my situation. Other times I have presented far less information, and following the format with which the doctors has in mind: ask a few questions, if there's no match with what's in their mind, them there's no problem. I'm god to go and I'm back to normal, so they think. Bitten there are those occasions where I voluntarily add some information, and them I get a response of "oh, how come u didn't mention that?"
On a separate, but related note, I have had similar difficulty with friends and family. When meeting up at various gatherings, and getting into discussing my health, I try to limit what I say, only to have people respond with interest. Such, responses, however, r expressed in a way that the person knows what I'm going through, and subsequently their advice on what to do and how I should act is spot on. Under these circumstances, such responses are incredible demoralizing. I then feel intent on describing in greater detail what I've experienced, only to have the other person begin to zone out. So I am then stuck with a person who thinks my current health situation is not serious, nor that I am truly experiencing a very difficult situation, but when the opportunity arises where I think I can get that person to understand, they shutoff. So what I've learned is to simply not discuss how I am really doing. And when that happens, I'm simply lying when I tell the person "I'm doing great".
Moral of the story: don't become chronically ill otherwise you're truly screwed!
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